Are You A Internet Whore?

When you look at my Face Book Timeline it is always filled with activity. I commented to this. I said that. I shared this. So, and so posted this on my Timeline. I posted a photo on a certain someones Timeline. Often there are uplifting posts from people asking how I'm doing? Leaving silly photos, or maybe they just want to say hi. Almost always this is a daily occurrence. From the outside looking in it looks like I'm a Face Book junkie. It looks like I spend way to much time online. Maybe I do? Do you really know? Then there is my blog, and my two Face Book pages. There is my cook book I'm writing, the poetry, and I'm working on a children's book. Often when you see me you see me on my iPad, laptop, or cell phone. Yes, I'm online. Quickly so many people have made so many BAD assumptions about the time I spend online. They assume the worst. Even my own family. They think I have taken to the internet to avoid things. To be lazy. To run away from reality so to speak. Or that I have taken up a crazy new lesbian love with my electronics. So let's take a crash course in my illness for just a quick second. Okay? I have Ehlers Danlos Syndrome. It causes pain. Lots of damn pain. DAILY. Some days are better than others, but it is always there. Pain. Not will I have pain. How much? Next I have POTS. That causes a whole list of things. From chest pain, to the shits. POTS always makes it difficult to stand up. Then I have severe Migraines. Sometimes they leave one side of my body paralyzed. I have a headache everyday too. Not will I have a headache? How bad will the headache be? So needless to say I'm a mess on some days. Some days I can't do much. The internet serves as distraction. It keeps my mind away from the pain. It keeps my mind away from the 'wooo is me'. I talk to people on there. I read about things online. I watch funny videos on YouTube. I read other peoples blogs. Most of all I connect with people just like me! People with EDS, and POTS. People who just get it. People who lift me up. When I'm at my worst they tell that 'things will work out', 'you can do this', 'we KNOW how you feel'. When I had my stroke my Facebook Timeline was filled with uplifting posts from these online people. They also called me nonstop in the hospital to check up on me. Do you even get it you asshats? First off when one is online what are they doing? Even a normal person? Ya you guessed it Einstein. They are usually sitting, or laying down. You can surf the web in bed. On the couch, or even on the John. So why wouldn't I? Not to mention that these days the array of things one can buy online. Even TP. Most websites if you spend over 50 you get free shipping. Like that is hard to do. But I take it up a notch I have an Amazon account. Real friends? You bet your ass my online friends are my REAL FRIENDS! They call me when my own family don't call me. When I was in the hospital this last time my mother called me, and several of my online friends called. No other family did. So ya they are real friends! They called many times. When my own family did not. I even received get well cards in the mail. From my family? No. My online friends? Yes. You could look at my Facebook Timeline it was flooded with concern. Friends? Have one the nerve to NOT call them friends is an idiot. This constant support keeps me going daily. Do I get it from my family? Other than my husband, and mother? No. Do I need it? Ya, but that hasn't made my extended family step up to the plate. So I have learned to let go a long time ago. Even my real friends checked out a long time ago. I can't say I blame them really. They have lives to live. It still hurts though. I don't know where I would be without the support I get online. This support helps me through on even my darkest days. I get THIS online. Better than any therapy if you ask me! In fact it is my therapy so to speak FREE of charge. I also give this same loving support to many people online with chronic illness. Chronic illness sucks, and when you happen to have rare ones it sucks even worse. Not like I can find a local support group. When your odds are 1in 20,000, and you live in a town that has only 400 people. Next town over 8,000. Do the math. I also shop online. I even sometimes buy my families TP. When you have an illness that makes standing hard, much less walking online shopping works. Shopping online means I can shop longer. Browse longer. Look more. I can shop at my terms. My time. When I feel like it. I'm not locked in to 'store hours'. If I actually go shopping I might last an hour, and want to punch an old lady. So if you want a gift you actually like. Don't judge me, and my online shopping. Otherwise you might get underwear, or a package of Ex Lax, as those are the isles I frequent in an actual store. Even my kids have learned they get better things this way. As I don't have to grab the first thing I see. As I need to get home, and get my feet up. So before you judge me. Get to know me. Get to know what my life is really like. Because if you did you would know that I can be online as much as I'm, and still do many things at home. Why? I'm good like that. Because if you think for one minute that I don't do things at home. Hahahahah Outside looking in right? Look hard. Look real hard. You will see.