I'm not a sensitive person. I don't like people knowing my business. I may share some stuff. Only a very tiny glimpse of the whole picture. Enough to shut you up, and keep you from asking, and so that I don't look like a cold hearted bitch. Some may find this odd that this comes difficult to me. As talking of sex, child birth, and poop come so easy. Well you see when I talk about those things you are left in shock so you forget to ask about the everyday stuff. I do that for a reason. I don't like YOU knowing. I don't like talking about it. I don't like people to know I struggle. That I struggle financially, health wise, and most of all emotionally at times.
I do struggle. Man do I struggle. Those very close to me know this. Only a very few I let into my Secret Bubble. They know me well enough that I don't have to tell them every thing . They see it. They add 2, and 2 together, She used to do that. She doesn't now. She can't. It must be hard. They know that if it could or should be done, and if I could do it I would. I have a few (very few) precious friends, and a husband that can read me well. They don't get caught up in the whole "you don't look sick thing". They just look at the hell I have been through the past few years.
Most of all for me it's very hard putting my emotions out there. All in the open. For everyone. I can, and will tell you all day long what EDS, POTS, and all the other illnesses have done to my body. They make me feel like this. When I talk about how I feel I often refer to it in a physical sense. Not emotional. I can go on, and on how these conditions have tore my body up. How they cause my pain. Cause my nausea etc; etc; etc;
It's very hard for me to say these illnesses have caused me sadness. They have caused me pain. Not the pain in a physical sense. They have caused me anger (anger comes pretty easy lol), grief, and a deep sense of loss. They at times cause me depression, and make me feel like less of a person. Make me feel of a burden to my husband. I went from being the strong one all the time to being the one who needs cared for some of the time. I went from having a job where I got to please lots of people all day long, and was paid to do so. To fighting for what was mine. My SSI Benefits I worked so hard to pay in. When you take away my income I felt so worthless. I hate not being able to help pay the bills. It pisses me off! It saddens me I can't work. I miss the people. The socialization.
I miss wearing shoes with shoes laces. Shirts with buttons, and pants with zippers. I don't wear these kinds of clothes because they are hard for me. The shoes....I don't bend over. Bending over can cause me to pass out in a New York minute. The buttons are difficult when my hands are numb from neuropathy, and or swollen from joint pain.
I talked about how my kitchen is accommodated to me. I hardly chop vegetables. I used a food processor. When I do chop I have extra light knives, and a tiny light cutting board. I use plastic dishes, and cups for they are lighter. A wooden rolling pin. Marble one is too heavy. I told them of the Godsend Kitchen Aid my sister bought me. How I can dump, and mix. That I can make cookies, and bread again! Things I couldn't do before. My hands can't mix/knead that thick stuff. I cook, and prepare food allot sitting down.
How I shower at night because it wears me out so bad so I can just go to bed afterwards.
There was much more..........if I told you everything you would get bored.......another post another day......
The attorney said things went "really well", and that I did, an "amazing job!"
Now to wait.............
This is my blog about living with chronic illness. I have Ehlers Danlos Syndrome, and POTS. One thing I refuse to let illness take away is my funny. It's about all I got let. Laughter gets me through things, and helps me get out of things. So come laugh with me. Why not?
Showing posts with label disability hearing. Show all posts
Showing posts with label disability hearing. Show all posts
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